Some Helpful Prostate Cancer Resources
National Prostate Cancer Coalition
www.fightprostatecancer.org
National outreach, awareness, and advocacy organization;
manages a mobile testing clinic that makes visits around the country (schedule at www.fightprostatecancer.org/site/Calendar?view-MonthGrid –Costa Mesa in Sept.!); free electronic newsletter with highlights of current research and other useful info; source for blue-ribbon pins and other awareness-raising merchandise
Yahoo Group:
health.groups.yahoo.com/group/prostatecancerandgaymen/
Extensive archives and active discussions focus on personal experiences of gay men of all ages and backgrounds
There are dozens of other groups on Yahoo and other services that provide fora for discussing prostate cancer.
YANA (You Are Not Alone Now)
www.yananow.net
Another vast resource – this one hosted in Australia and South Africa – including a list of individuals (including gay men) willing to be mentors for those newly diagnosed and a large compilation of links to all sorts of relevant sites
Phoenix5
www.phoenix5.org
Extensive info on prostate cancer, a discussion of treatment side effects, pages on sexuality, intimacy, and companions, and loads of useful links, all put together by a man with prostate cancer; includes a "Radical Prostatectomy Survival Handbook"
www.phoenix5.org/Basics/treatsides/vossRP/vossRP1.html
site map makes info easy to find
American Cancer Society
www.cancer.org
In addition to information on cancer in general, the ACS site includes useful message boards in Q&A format and a detailed guide to prostate cancer, including a piece "Risks and Side Effects of Treatments"; also publishes a useful booklet "Prostate Cancer: Treatment Guidelines for Patients"
National Cancer Institute
www.cancer.gov
Site includes listings of clinical trials and discussions of their results; also booklets such as Treatment Choices for Men With Early-Stage Prostate Cancer
www.malecare.com
An extensive education and support network set up by doctors, psychologists, and social workers; numerous local support groups, many of which are primarily for gay men
Us TOO
www.ustoo.com
International prostate cancer education and support network; Us TOO has over 320 Support Group Chapters Worldwide and publishes a monthly newsletter
Prostate Cancer Foundation
www.prostatecancerfoundation.org
Funds research into prostate cancer; published Report to the Nation on Prostate Cancer: A Guide for Men and Their Families, also available on website
Prostate Cancer Research and Education Foundation
www.pcref.org
PC-REF provides seed money for innovative prostate cancer research, provides support to prostate cancer patients and their families, and educates the general public on prostate cancer; has weekly call-in programs and expert lectures, with archives available on the website
www.prostate-help.org
Site by a man with prostate cancer includes a helpful list of questions to ask, as well as a list of things to know and have; take part in discussion groups and live weekly chats; searchable, structured archive of Q&As on prostate cancer
Prostate Cancer Research Institute
www.prostate-cancer.org
Site includes a useful flyer "What You Should Know About Prostate Cancer", a glossary of medical terms, and a list of other links; fee newsletter, archived PowerPoint lectures;
Cancer Research Institute
www.cancerresearch.org/prostatebook.html
"...exploring the body's immune system as a way to prevent, control, and cure cancer"
The Prostate Forum
www.prostateforum.org
California chapter of US-TOO and sponsored by the American Cancer Society; frequent meetings, some targeted at men at specific stages in diagnosis or treatment of prostate cancer; extensive video library available for borrowing
American Urological Association
www.urologyhealth.org/index.cfm
Prostate Cancer Education Council
www.pcaw.com
Organizes Prostate Cancer Awareness Week – this year, September 17-23
WebMD
webmd.com/diseases_and_conditions/prostate_cancer.htm
Johns Hopkins / Brady Urology Institute
urology.jhu.edu
Leading center for prostate surgery; developed an online guide
www.usnews.com/usnews/health/cancer/prostate/pros.about.htm
with U.S. News and World Reports
Mayo Clinic
www.mayoclinic.com
Another leading center for prostate cancer treatment; site includes a What's Best for Me? guide
www.mayoclinic.com/health/prostate-cancer/PC99999
The Official Journal of the Association of Gay and Lesbian Psychiatrists has issued a Special Double Issue called A Gay Man's Guide to Prostate Cancer
This list, representing a fraction of the information available on prostate cancer, is provided by the Gay Men's Prostate Cancer Support Group of The Desert Pride, Center as a resource only. The Gay Men's Prostate Cancer Support Group does not endorse or advocate any specific treatment or website. We are simply providing a starting point to assist those interested in learning more about the disease.
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